ALS Clinic
|
ALS Clinic at Fontaine Ave. Neurology
Site
|
A unique commitment
The Richard R Dart ALS Clinic at the University of Virginia
Health System began in 1999 as the first multidisciplinary clinic in
Virginia specifically for persons with Amyotrophic Lateral Sclerosis
(ALS) and their families. Patients come from hours away to take
advantage of our Clinic's unique services. We also serve persons with
Primary Lateral Sclerosis (PLS) and Bulbar Palsy.
Our goal is to provide the best possible diagnostic evaluation, treatment and support to supplement the care that patients receive from their local neurologists and family physicians.
What to expect
When a person with ALS comes to UVA's ALS Clinic
they meet with a special healthcare
team familiar with the unique challenges facing those with ALS,
their caregivers and families. This team includes: a neurologist,
nurse coordinator, physical therapist, occupational therapist, social
worker, speech language pathologist, respiratory therapist,
nutritionist, and volunteer. Also present are representatives from two
national organizations that provide support for persons with ALS -
ALSA and MDA. Our patients are seen, on
average, once every three to four months. Patients remain at
clinic for three to four hours, during which time the individual team
members perform assessments, answer questions, make recommendations,
and suggest equipment and referrals when indicated. Additionally, the
physician may discuss eligibility for participation in clinical trials
related to ALS.
Meet our team
We have dedicated professionals with specialized training in managing
the care of patients with ALS and PLS. Meet our physicians and team members.
Hours and location
Clinics are held on Thursdays at the Fontaine Research Park.
The clinic is located on the first floor of 500 Ray C. Hunt Drive. When
you enter the building, turn right past the information desk and the
clinic is immediately on your right.
Make an
appointment
New patients are first seen at the UVA Neuromuscular Clinic - please
call 434-982-0170 for an appointment, and have your local neurologist
or primary care physician fax your records to 434-924-9068. For
follow-up visits to ALS Clinic, or for questions, please call the ALS
Clinic Coordinator, 434-243-5932.
Community support
The Richard R. Dart ALS Clinic exists because of
generous donations -- most from families and friends of patients
who have succumbed to ALS. These individuals understand firsthand the
suffering associated with the disease. They appreciate the Clinic's
goals and want to ensure that others benefit from it. If you choose to
make a donation, please be sure to designate your gift specifically to
the ALS Clinic.
Resources and Educational Materials
Our interdisciplinary clinic staff has created multiple
educational materials for our patients and families. Click
here to access these materials and to find links to other valuable
resources for patients and families affected by ALS.

