At the UVA HD Program, we are currently enrolling participants for the COHORT study. This long-term observational study currently involves 43 North American and Australian HSG sites. The goal of COHORT is to collect clinical information to learn more about the natural history of HD and to correlate these findings with the genetic and hereditary information that are obtained from the analysis of blood DNA and family history patterns. This knowledge will contribute to a better understanding of potential treatments, and will assist in the planning of future research studies of experimental drugs aimed at postponing the onset or slowing the progression of HD. COHORT is recruiting both adults and children who have clinically diagnosed HD. In addition, the study is also recruiting any adults who are a part of an HD family. Individuals who choose to participate will have one study visit every year for as long as they are able and choose to participate.
If you are interested in participating, please contact Susan Dietrich on the UVA HD Helpline: 866-290-4528.