Huntington's Disease Predictive Testing Program

The UVA HD Program offers predictive testing for presymptomatic individuals at risk for HD. Because the genetic mutation that causes HD is known, an individual can be tested for the presence or absence of the gene. The decision about whether or not to undertake predictive testing is a deeply personal one. For some individuals, this test will provide much desired information about their future. Others will choose not to undergo testing.

In accordance with the HDSA Guidelines, the UVA HD Predictive Testing Program consists of several evaluations and counseling sessions with a neurologist, neuropsychologist, and genetic counselor. The program consists of an initial intake over the phone, at least three in person sessions for genetic and psychological counseling, neurological and neuropsychological evaluations, a results disclosure session and follow-up counseling.

Predictive Testing Program Team

• Madaline Harrison, MD, Neurology
• Carol Manning, PhD, Neuropsychology
• Patricia Allinson, MS, Genetics

The Predictive Testing Program at UVA is dedicated to providing pre- and post-test counseling and support to individuals at risk for HD.  Additional information about the program is available from the genetic counselor on the HD team, Pat Allinson, M.S., at 434-924-2665, or toll-free at 1-800-251-3627, ext. 4-2665.